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November 2021
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European News
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ERN Exchange Program Suspended
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Due to the fourth wave of the Covid-19 pandemic and the steep rise in infection rates, the implementation of the Exchange Programme has been suspended by the European Commission until the situation improves. Hopefully, the Programme will be resumed from 1st of March 2022 onwards – this will be reviewed and confirmed with the European Commission based on the outlook in February.
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ERN ITHACA Projects
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ERN ITHACA Annual Board
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Our annual Ithaca Board will be held next week in Madrid, from Thursday 9th to Saturday 11th of December, despite the recent Covid wave. Participants who cannot travel to Spain will be able to connect remotely and will be sent a link shortly. The coordination team looks forward to seeing you all!
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You can find an updated version of the program here.
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Call for Collaboration Survey
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In expectation of the Board, we would like to evaluate our dissemination of your collaboration calls to the enlarged ITHACA network (how helpful do you think that it has been to recruit more patients, how many answers have you received, did it yield any publications, etc). If you have previously submitted calls for collaboration through the ERN-ITHACA network, we would be very grateful if you could answer this short survey.
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To learn more about or submit a call for collaboration, please visit our website. You can also now find at this page an alphabetic table of all ongoing collaboration calls.
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News from EJP RD
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EJPRD: New IRDiRC Working Group on MedTech
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IRDiRC’s Therapies Scientific Committee (TSC) & Interdisciplinary Scientific Committee (ISC), alongside with the University of Twente are jointly establishing a Working Group to explore the role and value of medical devices in rare diseases. The Working Group aims to create a better understanding and enhanced awareness of device developer’s needs, the standardized outcomes to define user needs for devices, and to offer a groundwork for developing solutions to improve the (regulatory) landscape of MedTech use for rare disease patients.
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Interested candidates can submit their application (CV, biosketch and letter of motivation, one paragraph each) to the Scientific Secretariat before 14 December.
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EJPRD: Pre-announcement of the Joint Transnational Call 2022
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The European Joint Programme on Rare Diseases pre-announced the Joint Transnational Call 2022, a funding opportunity for research projects on the development of new analytic tools and pathways to accelerate diagnosis and facilitate diagnostic monitoring of rare diseases.
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The aim of the funding opportunity is to enable scientists in different countries to build an effective collaboration on a common interdisciplinary research project based on complementarities and sharing of expertise, with expected impact to use the results in the future for benefit of patients
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Topic: Development of new analytic tools and pathways to accelerate diagnosis and facilitate diagnostic monitoring of rare diseases
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The call will open on December 14th.
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